MOVE is the LFC Foundation’s specialist coaching project for Cystic Fibrosis patients, helping to encourage young CF patient’s physical activity levels, to improve lung function and quality of life.
What is MOVE?
Since early 2018, the LFC Foundation has provided specialist coaching support for children living with Cystic Fibrosis at Alder Hey Children’s Hospital.
Our MOVE sessions take place every Wednesday, with patients attending the clinic on a 6-to-8 week’s cycle. Activity stations focus on improving fundamental movements; agility, balance, coordination and speed of each CF patient we engage with.
Each participant in the project is provided with an LFC Foundation coach mentor to help drive sports participation and a sustainable level of support. As hospital visits can be uncomfortable for CF patients, our team of coaches wearing LFC colours and crest can help lift spirits and raise moral.
Jurgen Klopp recently paid a visit to Alder Hey Hospital, to learn about the LFC Foundation’s MOVE project, which supports Alder Hey patients who have Cystic Fibrosis. One of those patients is football-mad Carson Kehoe (13).
Although an Everton fan, Carson was clearly overwhelmed to meet the LFC Manager, who had come to hospital to learn about Cystic Fibrosis and how the MOVE project is helping local kids like Carson.
After having a kick-about in the gym, Jurgen chatted with Carson about the importance of keeping active and joked that he should consider switching football teams.
What is Cystic fibrosis (CF)?
Cystic fibrosis (CF) is a genetic condition affecting more than 10,400 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing.
The gene affected by CF controls the movement of salt and water in and out of cells. People with cystic fibrosis experience a build-up of thick sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body. Thick mucus can block ducts of the pancreas, which blocks digestive enzymes from reaching the intestines to digest food, inherently increasing the risk of malnutrition and delayed development.
Children with Cystic Fibrosis can be seen in the multidisciplinary Cystic Fibrosis clinic at Alder Hey Children’s Charity, which runs every Wednesday morning. Each young person can be seen by a; physiotherapist, doctor or nurse specialist and can also see the psychologist.
How does MOVE benefit CF Patients?
Physical activity is critical to increasing the life expectancy of children living with CF. Through exercise, benefits include a slower rate of decline in lung function and clearing of mucus allowing for easier breathing.
As children with CF may have cycles of infection, physical activity helps create more reserve for the whole body to rely on during periods of infection, helping the patient to resume activity faster following a bout of illness.
Alongside the LFC Foundation aiming to improve the patients V02 Max Increased lung function, we provide measurable and sustainable activity working closely with the clinical at Alder Hey.
There is also an improvement in mental wellbeing of both patients and family members, improving their overall quality of life.
The long-term objective of MOVE is to encourage CF patients to increase their physical activity internally through our LFC Foundation sessions and to pin point the participants interests outside of the MOVE Programme with the LFC Foundation, such as PL Kicks Football and Open Goals.